Sunday, November 20, 2011

November 19th, 2011

Wednesday November 17th, 2011
  • SHR and a great visit with the morning crew! One lady, who just started treatment, said "I expected to come down those stairs and see a bunch of quite people, lost in their own thoughts, sort of feeling sorry for ourselves but instead every morning everyone is smiling. Everyone is so happy to see each other! I actually look forward to coming!" She and her very sweet husband drive a little over an hour each way - five days a week. Her cancer is located in her nose. It still wrinkles up when she smiles.
  • We ate breakfast (Ran’s stuck on Cheerio’s at the moment) and then bundled up for a walk before heading back to IUHMC. We walked the same path Ran had taken on Monday. He couldn't wait to show me the houses. So, down to the river and then up the hill we went – passing very unique homes on the right that overlook the water. Most, very Frank Lloyd Wright in their architectural style. Our favorite was the same. "The leaves on the trees are falling to the sounds of the breezes that blow". . . today that breeze is a rock band and I have a feeling the trees will be bare by the end of the week.
  • We packed our bags for the evening. We were off to meet the new lady in Ran’s life, Peggy 2 Peg Tube. We checked in and met with Dr. Cullem, who would be inserting Peggy 2. Very calm, approachable, and positive. I was given a pager and shown where to wait. The procedure only took about 30 minutes. We were joking earlier in the day - making guesses about how they know where to insert the tube. I said they probably stick a light down your throat and wherever it glows is where they cut. I swear. . .that is what they actually do!! 
  •  The Peg Tube, otherwise known as a feeding tube, was placed for precautionary reasons only. This is not a mandatory part of treatment but everything that we've read explained the positive aspects! Ran likes to think of Peggy 2 as his back-up parachute - she's there when he needs her! The hard part about losing your appetite is just looking at food. The site of food is almost worse then the actual eating. Using Peggy 2 will allow Ran to be in complete control of his diet instead of it controlling him. He is still able to eat (whatever he wants - whenever he wants) and is actually encouraged to continue to drink and use his throat muscles for as long as possible.
  • Once I was beeped I was able to go back and be with Ran as he "woke up". One of the Docs that was with him told me he was the most polite patient she has ever had. From the beginning he was very agreeable and every time they would explain what they were going to do next he would say "Ok, yes ma'am, thank you." "Thank you." Thank you." He kept saying it throughout the entire surgery!
  • There is nothing like being seen through the eyes of the love of your life as they come out of a drug induced state! Ran's eyes always look the same. He makes contact with mine and then his mind makes contact and his eyes smile before his mouth does and he holds his hand up for me to touch and says "Hey Margie, how are you?" Always thinking about how someone else feels first.
  • Favorite after surgery quote: "I love drugs. They just cut a hole in my stomach and I can't even feel it!"
  • An up and down evening - loud rude roommate - a little fever - a little nausea - came out of it though with the help of a wonderful night crew (Nicole and Sara), a glass of sprite and three Popsicles. Thursday morning now, went straight to SHR after being discharged and then back to the HL to spend the day catching up on sleep and work. Miso soup sounded god for dinner so we found a place, shared some edamame, fried rice for Ran and Sushi for me. He didn't have a great appetite but didn't feel bad. Ate what he could and that's the new way of our world.
Friday November 18th, 2011
  • We were determined to be outside today. Ran woke up feeling great! We headed out the door to go watch Regis on his last day of the show with the morning crew at SHR. Checked in with Peggy (told her about her new namesake, no weight loss or gain this week (for either of us!) :), saw Dr. Sun and her famous flashlight, and were free for the next few days!
  • We spent the entire day going from one thrift store to the next antique shop is search of the perfect chair for Randy's dream reading nook. No luck finding a chair but it was a wonderful day. Our last stops were in Mount Vernon (every state's got one) which is about 20 miles from Iowa City. Beautiful farm land with rolling hills the entire way. Home of a very old and ornate Cornell College. 
  Saturday November 19th, 2011
  • We did very little today. Spent the morning working online and then Ran took a nap while cozied up in front of the fire watching college ball. When it hits him it hits and he has to rest. We only left to go to a movie - we chose the funny one- and then hung out in the bookstore for a bit afterwards. You've gotta love a book store - stimulates conversation from one extreme to another! The weather has changed considerably throughout the day, the wind picked up and the temp has dropped. It's going to be another cold night in IA.

    Thursday, November 17, 2011

    November 17th, 2011

    Ohhh, WOW, it's already been a week since we wrote. I think the treatments are making Ran's fingers hurt because he can't seem to keep up with you guys :)
    Let's see, the easiest way to get you all caught up with my Super Hero may be by using a bullet type format. Put on your vests. . . .


    Friday November 11th, 2011
    • A visit with Dr. Sun after going through her famous ray gun. All looks good on the bright side of the moon. Lost 7 pounds last week. . .while eating donuts and pie. . .how does that happen? I gained two without eating any of that yummy crap.
    • Ran was asked to be part of a study. Jen is doing research to determine if the use of a tens unit directly after radiation can help reduce the pain and therefore the need for pain meds. Ran was excited to be a part of this as he's tried to back off of the meds as much as he can. Too many side effects on top of all of the others.  Jen is a young lady who is working on her Doctorate. She went to war with cervical cancer five years ago and won! A skeptic at first, she was asked to be a part of similar studies using acupuncture and reiki. She said to her surprise (not to mine though!) they both worked. She became immune to the acupuncture after some time but continued with reiki after each treatment. (Chris, you know what I'm thinking?! Wish you guys were going to be home at Thanksgiving to give this a try!) 
    • Saw Dr. Wehbe a little early and could have escaped that joint but we had to wait on blood work - which ended up being mixed up - and no time was saved. Kidneys look good and we got on the road! 
    • Happy Veteran's Day!
    • Happy Birthday Denton! Had a great ride to Hermann (well, I did, Ran slept most of it!) Had a wonderful dinner, stimulating conversation, music never sounded better, slept more soundly and later than we had in weeks in a wonderful brand new bed given up by DA and Lisa. Spent the morning walking around, visiting, having a bit of vino (we were in wine country after all!), some coffee and donuts and then drove a very slow ride back to Iowa. Stopping at antique stores to stretch our legs and look for hidden treasure. Thank you to everyone who was involved in making our little escape a memorable one. We love you all. (Ruth and Tom. . .everyday. . .each and every day!)
    Sunday November 13th, 2011
    • Worked on work in the morning.
    • Fed the wild turkey some of the deers corn! He is one big boy, he better start hiding!
    • Got cleaned up, drug my feet, packed my bag, drug my feet, cleaned up the room, drug my feet. . .Sunday used to be known as Sunday Funday but since that's the day I have to leave it sucks some of the fun away.
    • Ate lunch at the Vine and watched the Eagles. (huh, looky there, we may have discovered another reason Sunday is loosing it's "Funday" title!!)
    • I brought Ran back to HL where we hugged and gave a high-five good-bye till Tuesday night. I set the cruise, plugged in my book, and headed south. Ran took a nap, ate some more, and watched football with the guys.
    Monday & Tuesday:
    • The weather was beautiful so Ran got out after Super Hero Radiation (SHR) and did some exploring both days. 
    • Monday he went for a walk in a neighborhood we had spied a few days earlier, ate as much as his stomach and throat would allow, watched Monday night football with Walace.
    • NOTE: Now whenever Randy eats he announces what his food tastes like. Since his taste buds are changing as a result of both the SHR and Chemo some things no longer taste the same and others do. So, if something does still taste the same, he feels the need to say so. Ex. "Hey, this coffee tastes like coffee. This potato tastes like a potato. These nachos taste like nachos." You get the picture. I can't help but think of Charlie and the Chocolate Factory each time he does this. Remember the part where they are all licking the wallpaper and Wonka declares "the snozberries taste like snozberries!"Click here for a memory lane!
    • NOTE: His smells are also changing and the scent that I have worn for the last 10 years (white tea and ginger) now smells awful to him - can't stand it - very chemically (which Dr. Schade pointed out it IS indeed a chemical!) Gotta admit, this one made me a little sad, he's always complemented my sent as I walk in a room or get in the car. Billy suggested I just wear Windex!
    • NOTE: Throat starting to hurt a little bit more. Ran, in true Randy style, said he kinda liked it at the moment. The "hurt" lets him know that it's working! 
    • Headed back after a whirlwind of work on Tuesday (always great to see everyone though and be with my students - whether they know it or not they help with my perspective!) Perfect driving weather. Biggest problem I ran into was that the door to my gas tank wouldn't open. In the middle of nowhere so I had to have the guy behind the counter help me pry it open!  Needless to say, it no longer closes!
    • Ran was waiting outside for me upon arrival. Home really is when and where we are together. 
    • As soon as I got inside the room Ran handed me a pile of cards and postcards he had received.We would like to take this little part of our update to say Thank you. These notes, both sincere and funny, have a great power behind them! I like how he stated it best, "I will never again take for granted the power of the written word, a small note, a card." He is emotional, not because of what is going on, he always has been - one of the qualities I love best - and he fills up with tears from all the love that he is constantly being sent his (our!) way. Silas, your Super Hero card was PERFECT and Ran has it framed on the dresser. It will remain a part of our decor once home! Carly Rosebud - your artwork was beautiful and made Grandpa smile from ear to ear! We know it takes time and that everyone is so very busy. Please know, although the HL is a home away from home it is NOT home and that can weigh on a guy.  Each note reminds us where we come from, what's important in life, and how lucky we truly are. What's it all for without friends and family?

    Thursday, November 10, 2011

    November 10th, 2011

    Happy Marine Corp Birthday! My Dad called us at 8:00 this morning (9:00 ET) and was awake, pretty happy, and alert. I never hear from him that early and at first thought something must be wrong - because that is the kind of person I am - always the worrier! Instead, he was ready to tackle and celebrate his day. Ran talked to him a bit later in the day and was caught off guard by the closing OHH-RAH. His ooh-rah response back was a bit weak and dare I say. . sounded like it came from corpsman!
    Today Super Hero Radiation resulted in a little bit of a sore throat. It's to be expected though - a 'sun'burned throat can't be all that comfortable. This did not, however, affect his appetite. Donuts, pumpkin pie, milk, and cookies (and that was just breakfast!)
    We worked at "home" today and Walace, our new entertainment at the Hope House, cooked lunch for all of us. It was amazing. Really. Oh - my- goodness - good. Randy drove LeeAnn to the renew her Truck Drivers License since it will expire shortly and she is headed straight for CA when done with treatments. Unfortunately, she needed a Birth Certificate and has to devise a  new plan. I continued to grade while Randy blogged and hung out in the lounge. He was a little tired today, didn't sleep as well as you would expect and also hadn't napped ;) We laid down for about 6:00 for 30 minutes or so to "rest our eyes" as Pop-pop would say, and then went to pick up a few cards.
    Speaking of cards, Randy has received mail both yesterday and today and I can't quite explain his glow. Lots of love coming to him from the Crowder family, our creek family and our actual family! The cards, the cookbook and books, the letters, the care packages - reiterate that we have a million blessings to count each day. Thank you, thank you, thank you. Good-night.

    November 7th - 9th, 2011 (Redo)

    Like Kate wrote, last nights entry was lost so I'll give the condensed version of this week.  I arrived back at the lodge on Sunday evening.  The drive was easy as I was supplied with a great book on tape "Charlie Wilson's War" from Mary (thanks Mary). Those books really make driving go by fast and this one in particular, revolving around Americas involvement in the Soviet/Afgan war of the late 70's to late 80's, was of particular interest to me.  So interesting in fact I have continued to listen to the book in the room on the portable CD/clock radio provided. 
    Woke up early Monday ready for treatment but feeling somewhat tired and nauseous.  Returned to the room after radiation and just felt like resting and that's what I did.....for the rest of the day.  I guess I had no idea how tired I was from the weekend, driving, playing Leaf Champion of the World while walking to the UnderCliff with Matt (the champ) and Kate (former champ), Sat. night college football on TV (Alabama vs. LSU), then the drive back on Sunday.  Anyway I just sort of vegged that day, only up a few times to eat and then I settled in front of a TV in the lounge to watch Monday Night Football. 
    Felt much better when I woke up Tuesday.  There is a small workout room here so I hit it about 0730 to ride the stationary bike and some light calisthenics. Treatment at 0915 and then I wanted some eggs and toast, over easy, con tocino (a shout out to my awesome Spanish teacher Richard Wallace), hash browns and some OJ.  Still feeling great I headed out to the bookstore, which is attached to the mall.  After a few hours of online work, internet surfing, book reading, and book browsing I decide that I'm going to join that elite group of exercisers known as the Mall Walkers. To my surprise it was not so bad.  I put away my things in the car and returned to the mall and begin to walk - as close to the edge of the halls as possible, going down every hall, and walking a little faster than I normally would.  Oh ya, you would not mistake me for a casual shopper. Oh no, it was obvious what I had on my mind, some intense training....in the mall.  So after two laps and a small personal finish line celebration I headed back to the lodge.  After listening to a little more of my book I started to get hungry.  Hunger is a funny thing now.  When it happens I have to eat.  If I wait it sometimes goes away.  Also, if I get hungry for something, like Buffalo Wild Wings, that is all that will satisfy me....or so I think.  So I have this hankering for BWW and on my drive over there I see a Chili's and all of sudden BWW sounds awful and Chili's classic nachos is all that will work.  So, into Chili's I go and the nachos were great.  It's still Tuesday and really all I'm doing is killing time till Kate gets here which won't be till around 11 that night.  It's raining out and I know the drive is probably rough on her and the few times I call her I could tell she really didn't want to talk and drive at the same time (which is nothing like her) so the weather must have really been bad.  Once she arrives though all is good again and my life seems to be back to normal.  We spend Wed (it actually snowed all morning here) getting treatment and going back to the bookstore to work and walk the mall. Upon our arrival back at the lodge I attempted to blog and you know how that ended. 
    I just want to tell you a little about this fantastic team of medical professionals who have attended to me since I began coming up here a little over a month ago.  I have two medical doctors.  My radiation oncologist is Dr. Sun (I like to call her Dr. Sun with the ray gun).  She was born and Educated in China, sees my scans daily as she monitors the treatment, physically examines me weekly, and has made herself available to me anytime I feel like I might need to talk to her.  Her enthusiasm for what she does is (to use a medical term) infectious and if we were on a sandlot picking medical teams I would pick her first. She just looks like someone you would want on your team.  My other doctor is the medical oncologist; he is in charge of the Chemo.  His name is Dr. Wehbe, educated in the Middle East.  If you have ever sat in a room with a professional of any vocation and felt a sense of competency, then you know the feeling I had when I was first introduced to Dr. Wehbe.  He was honest and open about the diagnosis and what his role in the treatment was going to be.  I look forward to my visits with him because they're fun, I enjoy his bedside manner.  He has also made a point to let me know that he is only a phone call away, anytime, if needed....and he means it.  These two doctors are always on time, always in great spirits, and always followed by at least one fellow/resident/or medical student.  I can't tell you how eager these (I'll collectively call them students and pardon if I have insulted any of the medical professionals out there) students are.  They have the biggest smiles on their face as the doctor and I engage in our dialogue and they look as if they just can't wait to get their hands on you, finally, a real live patient they can go over with a fine tooth comb, find all the abnormalities, figure out what should be done and report out to the doctor.  They are all extremely attentive and bright and have been held in the starting gate for so long that finally practicing must be an overwhelming feeling.
    Everyone knows that in any organization there is a cadre of people without which it just simply will not work.  In this huge medical complex set on the picturesque campus of Iowa University, that group is the nurses.  I have one assigned to me, ya, one assigned to me.  I'll have her for the duration.  Her name is Peggy.  Again I can call her anytime, see her anytime, and she usually calls me every other day or so.  She knows more about how I'm supposed to look than I do.  If she detects anything that she thinks might not look right, she's on it.   She coordinates all of my visits throughout the hospital clinics, attends all of my meetings, ensures that my prescriptions are called in or delivered to me and is just the overall go to person if there is a question on the minds of anyone on the team.  She was meant for this and she never lets up.
    The ditch diggers and dirt slingers as I like to call them are the technicians on the front line of all this care.  They are in the labs, pharmacies, radiation monitors, and radiation room where I get my treatment. They have been fantastic.  There are four that attend during my daily treatments.  One comes to the waiting room with a smile and eye to eye contact.  They walk me past the vast array of monitors where my scans are being readied, and into the room where they ask "in any pain today Randy", "not today" I say. The other techs are readying the machine making casual conversation with me and they get me all ready.  They get me comfortable with a warm blanket from the oven, get the favorite radio station on Serious radio, then with a firm hand on my shoulder one asks, "ready to rock", "lets rock" I reply and the music gets loud as they get to their stations and do their extremely delicate work.
    To the teachers out there I want to say that this all comes together because students listen. Yes, they're listening, and I'm glad.

    Wednesday, November 9, 2011

    November 7th and 8th

    Ran just spent 30 minutes typing a blog on Monday and Tuesday and something . . . happened. Poof, it was gone. We won't push our luck! He said he'll do it tomorrow after the morning session!

    Sunday, November 6, 2011

    November 4 - 6, 2011

    Yesterday Ran ate a McDonalds fish sandwich (in between hiccup sessions) and said it was the best thing he had eaten in his whole life! Really, those were his words!!
    We were at the hospital by 9:00, as always, for the 9:15 Super Hero Radiation treatment. After only one week the receptionists greet us and check Randy in before he even makes it down the stairs to the desk to say "Good Morning." We are beginning to be on a first name basis with the other early morning radiation patients , enjoying our first cups of coffee over what seems to be our new topic of conversation; where, how big, how long have you had, how much treatment, how often, how far along, how are you feeling today? We then turn to where are you from, how far is your drive, kids, jobs (although many are retired!), vacations? See you tomorrow. Be careful driving home. Have a great weekend! See you on Monday! Next week we hope to walk there a little more often - as the aftermath of Chemo begins to fade away -  and get a little more exercise which is highly recommended.
    After meeting with Dr. Sun, our Radiation Doc, for the regularly scheduled Friday appointment we quickly hurried back to the HL, grabbed our dirty clothes, packed the duffle bag, and were on the road home for the weekend. I drove a bit over the limit as Randy drifted in and out of sleep.
    We found a crock-pot of warm soup and chicken breasts cooked in wine waiting for us at home. Although Hazim, our house guest for the remainder of the semester, had to head to OK before we got there he left us a big hug via food! We were in town just in time to say "Hi" to Matt and tell him our pending plans for Saturday. If Ran was feeling up to it, 'if' being the key word, we planned a walk to the UnderCliff, meet up with Oney and Sheff and then hitch a ride home with them. The weather was going to be perfect and we needed some slow movement and Vitamin D! Surprisingly, he asked if he could walk along with us. For those of you who don't know my brother Matthew, he is one of our very favorite people. When he is around you are happy. That's just the way it is! We almost never pass up an opportunity to be around him. I thought he was kidding at first when he expressed an interest in walking with us - as he walks for a living - but he wasn't. If it is possible to love him any more then we did - we do. It meant a lot to both of us that he wanted to spend his free time with us and was willing to do our normal in order to do so. That's some real love - 10 miles worth in fact!
    Despite a rough evening Randy woke up feeling well on Saturday and it was a perfect day. . . great lunch, continuous conversation, lots of laughing, lovely evening in our own home. The HL is wonderful but nothing beats home. Randy felt great all day. Thanks guys!
    This morning we worked on getting caught up on work, laundry, and tying up loose ends. Ran didn't sleep well so he snuck in a little nap before leaving for IA this afternoon. Should make it by around 11:00. He's been checking in along the way - so far so good. I must say, nothing about him leaving alone seemed right. That was a bit hard. The next couple days will be rough but I've vowed to work my tail off and see him shortly.
    The biggest concern at this point is what we expected from the beginning - eating. It just wasn't appealing for the majority of the week. You think you know what to expect but there just isn't a way to know it all. We have a better idea now and our strategies have changed. Next time, we feel we'll have the upper hand!
    ONE WEEK DOWN. . .SEVEN TO GO!

    Thursday, November 3, 2011

    November 3, 2011

    Who would have thought that the worst part about the first 48 hours after Chemotherapy would be Chemo hiccups? Hard, long-lasting, nothing makes them go away hiccups! I thought that Ran had read everything there was to know about what we were headed into. We've heard very little so far that we hadn't already read at least a little about. But, NOBODY mentioned this little side effect! When we visited with Peggy after Super Hero radiation this morning she said it was normal. One nausea medicine should help it (although the other one, as Nurse Ran was convinced, may be what is causing it!)
    It's a rainy cold day in Iowa City and a nap was in order.
    After the sun came out we ventured to the Herbert Hoover Presidential Library and Museum - if not exercising at least we would be standing and learning! It's rather funny that Randy has wanted to visit several Presidential Libraries in the past and time just didn't allow us to stop. Now, as life has forced time upon him, Herbert Hoover will be the first! It was a very well done museum. Can't think of anything more fitting at this venture than to read, watch and hear about Hoover's humanitarian centered life. A bumpy road as the President but an otherwise unwavering personal mission.